A starting point for parents
4 min read

Common Situations Parents of Children With Autism May Face

multiple children playing with blocks alongside clinician
Published on

23 Mar 2022

Common situations you may face as a new parent and what to do

Based on feedback from Soar families, we’ve put together a list of common situations and potential actions families can consider:

SITUATION:

“I’m struggling or my partner is struggling to

accept that my child’s development may

be different.”

POTENTIAL ACTIONS:

• Listen to your or your partner’s reactions without judgment—these feelings are completely normal

• Understand that seeking services early for your child is the most impactful way to help them

• Explain that even if your child doesn’t receive an autism diagnosis, there’s no harm done by an assessment or services to support their development

SITUATION:

“I’ve been advised to get my child assessed for autism, and there is a multiple-month waitlist for an assessment at my preferred provider.”

POTENTIAL ACTIONS:

• Get on multiple providers waitlists (see our directory of Colorado providers in the Appendix)

• Request to be on a cancellation list in case earlier spots open

• Call regularly to see if any new slots have opened

• Look into diagnostic assessments via Colorado Early Intervention or a local school district

 

SITUATION:

“I’m getting services through Colorado’s Early Intervention, but I think my child may need

more help.”

POTENTIAL ACTIONS:

• Seek out and utilize health insurance-based programs (most Colorado health insurance plans cover autism services)

SITUATION:

“I think my child is struggling, but my doctor says to wait before making a diagnosis.”

POTENTIAL ACTIONS:

• Advocate for your child: research and leading medical societies suggest early intervention is key for long-term child outcomes

• Consider seeking a second opinion from another doctor

 

SITUATION:

“I’m unhappy with or have a concern about my autism provider.”

POTENTIAL ACTIONS:

• Talk to your provider about your concerns and see if they can be addressed

• Consider switching to another provider

SITUATION:

“I like my autism provider, but I’m unhappy with my therapy team.”

POTENTIAL ACTIONS:

• Explain your concerns to your provider and see if a different therapy team can be assigned

• Consider switching to another provider

SITUATION:

“I’ve received a special education placement in a school, but I wonder if I could be doing more for my child.”

POTENTIAL ACTIONS:

• Consider supplementing school district services with health insurance-based services (most Colorado insurance plans cover autism care)

SITUATION:

“I’m emotionally overwhelmed or feel isolated/alone.”

POTENTIAL ACTIONS:

• Seek help from a professional therapist

or physician

• Ask for support from your family or community

• Find respite care

• Join a parent group

SITUATION:

“My spouse is handling things differently than I am, or we are having challenges.”

POTENTIAL ACTIONS:

• Seek to understand your spouse’s perspective and see if there could be a middle ground—everyone processes a diagnosis of autism differently

• Consider seeking couples therapy and support from a licensed professional counselor

SITUATION:

“A loved one (grandparent, relative, close friend) disagrees with my choices for my child.”

POTENTIAL ACTIONS:

• Point them to evidence-based resources on autism and autism therapy

• Suggest they look into support groups for extended family members

• Acknowledge—but don’t be intimidated by—their disagreement

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A starting point for parents

References

  1. A Parent’s Guide to Autism. Autism Speaks. 2018.
  2. Facts about ASD. Centers for Disease Control and Prevention. March 2020.
  3. Zwaigenbaum L et al. Early Intervention for Children With Autism Spectrum Disorder Under 3 Years of Age: Recommendations for Practice and Research. Pediatrics (2015), doi: 10.1542/peds.2014-3667E
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